DAY ONE HUNDRED FIFTY-FIVE

My bottles went well over night, but today I have been really tired. Mom and Dad have been with me all weekend and it has been so nice! Mom and Dad were able to go home and check on my dogs, so Mom called to check on me at 4:00 p.m. and the nurse said that I had finished my entire bottle, maybe I am getting my second wind or maybe I still have my days and nights confused. I know one thing that I am not confused about and that is being at home with Mom and Dad. When the doctor tells me I can go home my bags will be packed immediately, but Mom and Dad will have to check and make sure that I packed everything when they come to pick me up! The doctor has not set a "going home" date yet, but Mom and Dad will have to stay with me at the hospital again to practice with my accessories that I need when I go home. I am going to come home on oxygen, I will come home with a nebulizer, for breathing treatments every twelve hours and I will also sleep in my crib with a wedge that has a sling on it that keeps me on an incline which helps with my reflux. Please continue to pray for me that I will be able to go home soon.

DAY ONE HUNDRED FIFTY-FOUR

Dad feed me at 6:00 a.m. and then drove home to take care of my dogs and Mom fed me at 9:00 a.m. and I took all 80ccs. I am suppose to take 70ccs every three hours and I have been able to do that, but I guess I was super hungry that time. The doctor must be really getting me ready to go home because she turned down my oxygen to .1 liters and I am on 100% oxygen and doing well. The bottles at 12 p.m. and 3 p.m. were tough and I was unable to take all of my milk, but I am going to blame that on the changes to my oxygen, yeah, that sounds good, at least for now.

DAY ONE HUNDRED FIFTY-THREE

Mom and Dad were here and they were here all day and all night. Every time I woke up they were with me! I was able to take all my of my bottles, and I only spit up twice, it was quite a show and I got to change my clothes both times! Mom and Dad even took turns getting up with me, it was so nice to see them through the night, they usually call and check on me but now they knew how I was doing because they were there. It was an awesome day and God is good.

DAY ONE HUNDRED FIFTY-TWO

Mom came to visit today and reminded me that she and Dad were staying with me all day tomorrow and spending the night! I continue to finish my bottles and I am super excited about Mom and Dad staying tomorrow, I am even going to be on my best behavior!

DAY ONE HUNDRED FIFTY-ONE

I am back on a four hour feeding schedule, I started at 5 p.m. last night and I did well overnight, at each bottle I was able to take just a little bit more. At my 9:00 a.m. bottle today I was able to take all 90ccs with no problem. The feeding therapist gave me my bottle at 1:00 p.m. and I took 70ccs. then with Mom at 5:00 p.m. I took 65ccs and at 9:00 p.m. I took all 90ccs. Yeah me! I think Mom, Dad and I are going to have a blast this weekend hanging out!

DAY ONE HUNDRED AND FIFTY

The doctor and nurses are still going back and forth on how often I get my bottles so they decided that Mom and Dad will stay with me at the hospital Friday and Saturday. If all goes well there is even talk of me going home soon. Mom and I have talked about it and she thinks I do a better job on my bottles when I get some extra sleep so when they stay with me that will be my schedule, a bottle every four hours. The nurse also told Mom and Dad that how I do this weekend will be the final determination on whether or not I get a g-tube. Please continue to pray for God's will to be done.

DAY ONE HUNDRED FORTY-NINE

I took 80ccs today from one of my bottles, and that was after one of my four hour naps. I am making progress, but I think the nurses and doctor are still trying to figure out what is best for me, either a bottle every three hours or a bottle every four hours. It does get confusing though, if I take 70ccs then I have to take a bottle every three hours, but then I get tired easily and if I take a bottle every four hours then I need to take 90ccs which seems almost impossible without practice. One day soon I will check this off the "to do list" and go home.